General Introduction
The Vietnam Hemophilia Association (VHA) is a voluntary socio-professional organization composed of doctors, healthcare workers, people with hemophilia, and their families who share the common goal of uniting and working together to improve the quality of diagnosis, care, and treatment for people with bleeding disorders, as well as those interested in the study, treatment, and care of such conditions.
The Vietnam Hemophilia Association (VHA) is a voluntary socio-professional organization composed of doctors, healthcare workers, people with hemophilia, and their families who share the common goal of uniting and working together to improve the quality of diagnosis, care, and treatment for people with bleeding disorders, as well as those interested in the study, treatment, and care of such conditions.
The Association has legal status, its own seal and bank account, and operates in accordance with the laws of the Socialist Republic of Vietnam and the Charter approved by competent state authorities.
The Association’s headquarters is located at the Hemophilia Center, National Institute of Hematology and Blood Transfusion, Pham Van Bach Street, Cau Giay Ward, Hanoi City.
Specific objectives include:
- Raising community and public awareness about bleeding disorders, especially hemophilia and other congenital or acquired coagulation disorders
- Strengthening diagnostic, treatment, and rehabilitation capacities at healthcare facilities nationwide
- Building a patient support network and fostering connection, information exchange, and experience sharing among treatment centers, professionals, and people with hemophilia
- Collaborating with domestic and international organizations to mobilize resources, transfer knowledge and technology, and provide patient support
Vietnam Hemophilia Association – For the health and happiness of patients
History of Development and Formation
The Vietnam Hemophilia Association (VHA) was established during a period when the diagnosis, treatment, and care for people with bleeding disorders in Vietnam still faced numerous challenges—limited infrastructure, workforce shortages, and low public awareness.
Before 2007, most people with hemophilia—especially those with hemophilia—were treated only at a few central hospitals with limited conditions, and access to specific drugs, medical supplies, and genetic counseling was very restricted. To unite doctors, scientists, people with hemophilia, and families into a professional social organization, on February 28, 2007, the Ministry of Home Affairs issued Decision No. 164/QĐ-BNV, officially approving the establishment of the Vietnam Hereditary Hemophilia Association. This marked the first organization in Vietnam dedicated to hereditary bleeding disorders.
After years of effective operation, to broaden its scope and reflect the diversity of disorders and comprehensive patient care needs, on August 15, 2013, the Ministry of Home Affairs issued Decision No. 938/QĐ-BNV, renaming the organization as the Vietnam Hemophilia Association (VHA) and approving its revised Charter. From then, the Association officially expanded its activities to cover both hereditary and acquired bleeding disorders.
Over 15 years of development, the VHA has continuously grown in structure, reach, and impact—becoming a key force in supporting, caring for, and connecting the bleeding disorder community across Vietnam.
The Association has held four National Congresses, each marking a milestone in organizational growth, professional advancement, and social recognition:
- 1st Congress (2007–2013): Established the foundation of the Association, built its structure, issued the Charter, founded the first provincial chapters, and linked activities with the National Institute of Hematology and Blood Transfusion.
- 2nd Congress (2013–2018): Consolidated the organization, expanded provincial chapters, strengthened international cooperation—especially with the World Federation of Hemophilia (WFH)—and organized annual World Hemophilia Day campaigns.
- 3rd Congress (2018–2023): Marked a period of comprehensive development with the adoption of information technology, creation of a national patient database, and professional capacity building for healthcare staff.
- 4th Congress (2024–2029): Set the vision for sustainable development—promoting comprehensive care, precision medicine, digital transformation in patient management, and deeper regional and global integration.
Through each Congress, the Association has reviewed achievements, set new goals and strategies, and strengthened its leadership and coordination structure to ensure unity, effectiveness, and alignment with the Ministry of Health’s direction.
Thanks to visionary leadership, solidarity, and dedication of its members, the Vietnam Hemophilia Association has become a trusted partner for people with hemophilia and a bridge between the hematology field and the community—making vital contributions to the nation’s public health.
Development Orientation
In the coming years, the Vietnam Hemophilia Association aims to:
- Develop a comprehensive care system for patients with bleeding disorders from central to local levels;
- Promote the application of digital technology and health data in patient management and treatment;
- Strengthen international cooperation with the World Federation of Hemophilia (WFH), regional and global bleeding disorder organizations, healthcare institutions, research centers, and pharmaceutical companies;
- Enhance social mobilization and resource advocacy to improve people with hemophilia’ quality of life and integration opportunities.
Organizational Structure
The Association comprises a Central Executive Committee, various provincial chapters, and a nationwide network of members.
The Standing Office of the Association is located at the Hemophilia Center, National Institute of Hematology and Blood Transfusion, serving as the coordinating body for communication, professional and scientific activities, consultation, and international cooperation.
EXECUTIVE COMMITTEE OF THE VIETNAM BLOOD COAGULATION DISORDERS ASSOCIATION TERM IV 2024 – 2029
| TT | Full Name | Position/Working Unit | Title in the Association |
|---|---|---|---|
| 1 | PGS.TS. Nguyễn Hà Thanh | Director of the Central Institute of Hematology and Blood Transfusion | President of the Association |
| 2 | TS.BSCKII. Phù Chí Dũng | Director of the Hematology and Blood Transfusion Hospital, Ho Chi Minh City | Vice President of the Association |
| 3 | TS.BS. Nguyễn Thị Mai | Director of the Hemophilia Center - Central Institute of Hematology and Blood Transfusion | Vice President cum General Secretary of the Association |
| 4 | BSCKII. Tôn Thất Minh Trí | Director of the Hematology and Blood Transfusion Center, Central General Hospital Hue | Vice President of the Association |
| 5 | ThS. Nguyễn Mạnh Hiền | Head of Finance - Accounting Department, Central Institute of Hematology and Blood Transfusion | Member, in charge of finance |
| 6 | TS.BS. Nguyễn Hoàng Nam | Deputy Head of Clinical Hematology Department - Central Children's Hospital | Member |
| 7 | BSCKII. Nguyễn Thị Hồng Hoa | Head of Outpatient Department, Hematology and Blood Transfusion Hospital - Ho Chi Minh City | Member |
| 8 | BSCKII. Nguyễn Thị Minh Thy | Head of Hematology Department, Central General Hospital Can Tho | Member |
| 9 | TS.BS. Nguyễn Minh Tuấn | Head of Dengue Fever - Hematology Department, Children's Hospital 1 | Member |
| 10 | Bà Trần Thị Ngọc Yến | Mother of a Hemophilia patient | Member |
| 11 | Bà Nguyễn Thị Bích Ngọc | Mother of a Hemophilia patient | Member |
| 12 | BS. Thái Doãn Quang Hưng | Doctor of Artificial Kidney Department, Central General Hospital Hue (Hemophilia A patient) | Member |
| 13 | Ông Nguyễn Ngọc Lân | Hemophilia B patient | Member |